{"id":1804,"date":"2023-12-13T23:21:11","date_gmt":"2023-12-13T22:21:11","guid":{"rendered":"http:\/\/www.fondazionekian.com\/?p=1804"},"modified":"2023-12-13T23:21:13","modified_gmt":"2023-12-13T22:21:13","slug":"eu-health-data-space-to-boost-access-to-data-and-research","status":"publish","type":"post","link":"https:\/\/www.fondazionekian.com\/?p=1804&lang=en","title":{"rendered":"EU Health data space to boost access to data and research"},"content":{"rendered":"\n<p>During this week, MEPs adopted their position on creating a European Health Data Space to ease access to personal health data and boost secure sharing<\/p>\n\n\n\n<p>The New European Health Data Space would empower citizens to control their personal healthcare data and facilitate secure sharing for research.<\/p>\n\n\n\n<p>The law would give patients the right to access their personal health data across the EU&#8217;s different healthcare systems (so-called primary use), and allow health professionals to access data on their patients, strictly based on what is necessary for a given treatment. Access would include patient summaries, electronic prescriptions, medical imagery and laboratory results.<\/p>\n\n\n\n<p>The EHDS would allow aggregated health data, including on pathogens, health claims and reimbursements, genetic data and public health registry information, to be shared for public interest reasons, including research, innovation, policy-making, education and patient safety purposes (so-called secondary use). Sharing data for advertising or for assessing insurance requests will be banned.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>During this week, MEPs adopted their position on creating a European Health Data Space to ease access to personal health data and boost secure sharing The New European Health Data Space would empower citizens to control their personal healthcare data and facilitate secure sharing for research. The law would give patients the right to access <a href=\"https:\/\/www.fondazionekian.com\/?p=1804&#038;lang=en\" rel=\"nofollow\"><span class=\"sr-only\">Leggi di pi\u00f9EU Health data space to boost access to data and research<\/span>[&hellip;]<\/a><\/p>\n","protected":false},"author":1,"featured_media":1802,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[13],"tags":[40,1707,1796,506],"class_list":["post-1804","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-daily-news","tag-european-union","tag-health","tag-health-data","tag-research"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"https:\/\/i0.wp.com\/www.fondazionekian.com\/wp-content\/uploads\/2023\/12\/dati-sanitari.jpg?fit=292%2C172&ssl=1","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p7Eon2-t6","jetpack-related-posts":[{"id":1178,"url":"https:\/\/www.fondazionekian.com\/?p=1178&lang=en","url_meta":{"origin":1804,"position":0},"title":"The state of health in the european Union","author":"kian_admin","date":"27\/11\/2017","format":false,"excerpt":"\"Only by rethinking our health systems can we ensure that they remain fit-for-purpose and provide patient-centred care\" This is what the 28 Country health profiles suggest, providing an in-depth analysis of european Union member States'health systems. They look at the health of the population and important risk factors, as well\u2026","rel":"","context":"In &quot;Daily news&quot;","block_context":{"text":"Daily news","link":"https:\/\/www.fondazionekian.com\/?cat=13&lang=en"},"img":{"alt_text":"","src":"","width":0,"height":0},"classes":[]},{"id":730,"url":"https:\/\/www.fondazionekian.com\/?p=730&lang=en","url_meta":{"origin":1804,"position":1},"title":"World trade Organization confirms Russian pork ban is illegal","author":"kian_admin","date":"01\/03\/2017","format":false,"excerpt":"The world trade Organization's appellate body confirmed that Russia's import ban from 2014 on live pigs, pork and other pig products from the european Union violates international trade rules. The ruling concerns a ban imposed by Russia because of the outbreak of African swine fever in areas in the european\u2026","rel":"","context":"In &quot;Newsroom&quot;","block_context":{"text":"Newsroom","link":"https:\/\/www.fondazionekian.com\/?cat=3&lang=en"},"img":{"alt_text":"","src":"","width":0,"height":0},"classes":[]},{"id":1647,"url":"https:\/\/www.fondazionekian.com\/?p=1647&lang=en","url_meta":{"origin":1804,"position":2},"title":"European guidelines for border measures to protect health and keep goods and essential services available","author":"kian_admin","date":"18\/03\/2020","format":false,"excerpt":"This week the European Union presented guidelines to Member States on health-related border management measures in the context of the COVID-19 emergency. The aim is to protect citizens' health, ensure the right treatment of people who do have to travel, and make sure essential goods and services remain available. The\u2026","rel":"","context":"In &quot;Daily news&quot;","block_context":{"text":"Daily news","link":"https:\/\/www.fondazionekian.com\/?cat=13&lang=en"},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/www.fondazionekian.com\/wp-content\/uploads\/2020\/03\/download.jpg?fit=246%2C205&ssl=1&resize=350%2C200","width":350,"height":200},"classes":[]},{"id":1252,"url":"https:\/\/www.fondazionekian.com\/?p=1252&lang=en","url_meta":{"origin":1804,"position":3},"title":"Safer drinking water for all Europeans","author":"kian_admin","date":"05\/02\/2018","format":false,"excerpt":"Revised european legislation proposed will improve the quality of drinking water and access to it as well as provide better information to citizens. The right to access essential services of good quality, including water, is one of the principles of the european pillar of social rights unanimously endorsed by heads\u2026","rel":"","context":"In &quot;Daily news&quot;","block_context":{"text":"Daily news","link":"https:\/\/www.fondazionekian.com\/?cat=13&lang=en"},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/www.fondazionekian.com\/wp-content\/uploads\/2018\/02\/water.jpg?fit=450%2C315&ssl=1&resize=350%2C200","width":350,"height":200},"classes":[]},{"id":212,"url":"https:\/\/www.fondazionekian.com\/?p=212&lang=en","url_meta":{"origin":1804,"position":4},"title":"Changes for tobacco products sold in the european Union","author":"kian_admin","date":"20\/05\/2016","format":false,"excerpt":"From today, all european countries must comply with the tobacco products directive, whose measures for tobacco productson the european internal market aim to reduce the numbers of tobacco users with a particular focus on discouraging young people from taking up smoking and to ensure that citizens across the european Union\u2026","rel":"","context":"In &quot;Newsroom&quot;","block_context":{"text":"Newsroom","link":"https:\/\/www.fondazionekian.com\/?cat=3&lang=en"},"img":{"alt_text":"","src":"","width":0,"height":0},"classes":[]},{"id":1292,"url":"https:\/\/www.fondazionekian.com\/?p=1292&lang=en","url_meta":{"origin":1804,"position":5},"title":"Ambitious agreement on first ever European legislation to monitor and report CO2 emissions from heavy-duty vehicles","author":"kian_admin","date":"27\/03\/2018","format":false,"excerpt":"A provisional agreement on the regulation for monitoring and reporting CO2 emissions and fuel consumption data from new heavy-duty vehicles , i.e. lorries, buses and coaches is reached. This is the first ever European legislation focusing on the CO2 emissions from these vehicles. The new rules are part of the\u2026","rel":"","context":"In &quot;Daily news&quot;","block_context":{"text":"Daily news","link":"https:\/\/www.fondazionekian.com\/?cat=13&lang=en"},"img":{"alt_text":"","src":"","width":0,"height":0},"classes":[]}],"jetpack_likes_enabled":true,"_links":{"self":[{"href":"https:\/\/www.fondazionekian.com\/index.php?rest_route=\/wp\/v2\/posts\/1804","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.fondazionekian.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.fondazionekian.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.fondazionekian.com\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.fondazionekian.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=1804"}],"version-history":[{"count":2,"href":"https:\/\/www.fondazionekian.com\/index.php?rest_route=\/wp\/v2\/posts\/1804\/revisions"}],"predecessor-version":[{"id":1806,"href":"https:\/\/www.fondazionekian.com\/index.php?rest_route=\/wp\/v2\/posts\/1804\/revisions\/1806"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.fondazionekian.com\/index.php?rest_route=\/wp\/v2\/media\/1802"}],"wp:attachment":[{"href":"https:\/\/www.fondazionekian.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=1804"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.fondazionekian.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=1804"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.fondazionekian.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=1804"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}